TSN Original: The Butterfly Child

Most people have never heard of Epidermolysis Bullosa ever before. Commonly called EB, it’s an extremely rare and excruciating disease which causes the skin to become as fragile as a butterfly’s wings. Watch the harrowing story of 14-year-old Jonathan Pitre, a die-hard hockey fan who despite living with this disease, shows us all what it means to have strength, courage and perseverance.

Laura Gooyers

Laura Gooyers

Laura Gooyers has been writing about everything from music to movies for Goliath since 2015.